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I have learned to be grateful for the little hand movements, the little hits of progress that let me know that my son will achieve goals which we had been told he would never reach. I am no longer afraid of the tears or the future because I have learned to listen to my child and follow his lead. The reward is so empowering! I feel prepared as we plan his next steps because I know I can advocate for my son’s needs. I am aware of resources and supports and how to tap what works for our family. I feel confident in my ability to make choices and work with others to continue to support my son’s growth, development and learning. Thank you Community Connections and San Juan Kids for making such a huge impact on our lives!
by Christina Brown
Through the words of mom, Christina Brown
Little did I know in the spring of 2010, the birth of my second son would forever change the course of my life and the lives of my other family members. My son was born a healthy, full term baby. We were a happy family of four, home from the hospital and adjusting to life with two young boys. At a routine 4 month well child visit, our pediatrician seemed concerned and recommended my son undergo an ultrasound of his head. The first time I heard the word “Hydrocephalus” still stands vivid in my mind. I was clueless as to how this moment would change our lives. We learned that our son had suffered a stroke at birth resulting in Hydrocephalus, Cerebral Palsy (CP), Hemiplegia, as well as a vision impairment. Thus our journey began.
All of the above diagnoses led me on a mission to help my child. This is when I first learned about Early Intervention through San Juan Kids. I must say after being told by medical providers that my son would never walk or talk, I was discouraged, but determined that we would prove them wrong. Their opinion would not determine the outcome of my child.
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